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2014

Published ArticlesÌý

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  • Liben S, Langner R, Bluebond-Langner M. Pediatric palliative care in 2014: much accomplished, much yet to be done. Journal of palliative care. 2014 Dec;30(4):311-6. DOI: 10.1177/082585971403000414. Available from:
  • Durand MA, Gates B, Parkes G, Zia A, Friedli K, Barton G, Ring H, Oostendorp L, Wellsted D. Wordless intervention for epilepsy in learning disabilities (WIELD): study protocol for a randomized controlled feasibility trial. Trials. 2014 Dec;15(1):455. DOI: 10.1186/1745-6215-15-455. Available from:
  • Laddie J, Craig F, Brierley J, Kelly P, Bluebond-Langner M. "Withdrawal of Ventilatory Support Outside the Intensive Care Unit: Guidance for Practice."Ìý BMJ Archives of Disease in Childhood. 2014 Sep 1;99(9):812-6. DOI: 10.1136/archdischild-2013-305492. Available from:Ìý
  • Twamley K, Kelly P, Moss R, Mancini A, Craig F, Koh M, Polonsky R, Bluebond-Langner M. Palliative care education in neonatal units: impact on knowledge and attitudes. BMJ supportive & palliative care. 2013 Jun 1;3(2):213-20. DOI: 10.1136/bmjspcare-2012-000336. Available from:
  • Rajapakse D, Liossi C, Howard R F.Ìý"Presentation and management of chronic pain".ÌýÌýBMJ Archives of Disease in Childhood. 2014 May 1;99(5):474-80. DOI: 10.1136/archdischild-2013-304207. Available from:
  • McCulloch R, Hemsley J, Kelly P. "Symptom Management during chemotherapy".Ìý Paediatrics and Child Health April. Ìý2014 Apr 1;24(4):166-71. DOI: 10.1016/j.paed.2013.10.007. ÌýAvailable from:Ìý
  • Twamley K, Craig F, Kelly P, Hollowell D R, Mendoza P, Bluebond-Langner M.Ìý "Underlying Barriers to Referral to Paediatric Palliative Care Services: Knowledge and Attitudes of Health Care Professionals in a Paediatric Tertiary Care Centre in the United Kingdom".Ìý Journal of Child Health Care. 2014 March; 18(1):19-30. DOI: 10.1177/1367493512468363. Available from:

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Published Abstracts/Poster Presentations

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  • Henderson E, Mendoza P. "Symptom Profile of Children with Heart Disease Referred to Palliative Care - A Case Series Review". 2nd Congress on Paediatric Palliative Care - a Global Gathering, Rome, Italy, November 19-21 2014Ìý DOI: Ìý 2165-7386-S4-101, Page 146Ìý
  • Gibson F, Bluebond-Langner M, Hallman J, Bayliss J.Ìý "It's the only thing he enjoys about the whole (Hospital) Experience: Experience of Massage Therapy when receiving Cancer Therapies".Ìý Presentation at the 46th Congress of the International Society of Paediatric Oncology (SIOP), Toronto Canada October 22nd-25th 2014.Ìý Version of record published online October 16, 2014 Pediatric Blood and Cancer Volume 61, Issue S2 December 2014 Page S149.Ìý DOI:10.1002/pbc.25314Ìý
  • Hudson B, Ogden J, Whiteley M. "Managing Pain and Anxiety During Surgery with Distraction - A Randomised Controlled Trial".Ìý Poster presented at The British Psychological Society, Division of Health Psychology Annual Conference, York September 10-12th 2014.Ìý Abstract published online 12th September 2014 The British Psychological Society.
  • HudsonÌý B, Davidson J, Whiteley M, Ogden J. "Using Hand Reflexology for Pain and Anxiety Management During Conscious Surgery - A Randomised Controlled Trial".Ìý Poster presented at The British Psychological Society, Division of Health Psychology Annual Conference, York September 10-12th 2014.Ìý Abstract published online 12th September 2014 The British Psychological Society.
  • Day E, Jones L, Bluebond-Langner M "We just follow the patients lead: How health care professionals treating young people with haematological malignancies view the role of young people in decision making regarding their care and treatment".Ìý Presented at 20th International Congress on Palliative Care, Montreal, Quebec Canada September 9-12th 2014.ÌýÌý Journal of Palliative Care Third Quarter of 2014, Autumn 2014 (Issue 30:3) Page 240.Ìý
  • Kelly P, Crocker J, Bluebond-Langner M, Rajapakse D.Ìý "Utilisation of clinical notes in research and development of tools for data extraction".Ìý Poster presented at 20th International Congress on Palliative Care, Montreal, Quebec Canada September 9-12th 2014.Ìý Abstract published Journal of Palliative Care Third Quarter of 2014, Autumn 2014 (Issue 30:3) Page 240.
  • Kelly P, Crocker J, Bluebond-Langner M, Rajapakse D.Ìý "Unleashing the Potential of Routine Clinical Records as a Data Source:Ìý Use of Consensus Methods for Instrument Development in Investigating Breakthrough Pain in Children with Life-Limiting Conditions".Poster presented at 20th International Congress on Palliative Care, Montreal, Quebec Canada September 9-12th 2014.Ìý Abstract published Journal of Palliative Care Third Quarter of 2014, Autumn 2014 (Issue 30:3) Page 240.Ìý
  • Beecham E, Howard R, McCulloch R, Candy B, Laddie J, Rees H, Vickerstaff V, Bluebond- Langner M, Jones L. "Pharmacological Interventions for Pain For Life-Limiting Conditions in Children and Adolescents: Cochrane Systematic Review of Trials". Accepted for print by the 8th World Research Congress of the European Association for Palliative Care, Lleida, Spain, June 5-7 2014
  • Craig F, Kelly P, Boden C, Samuel J. "Palliative Care in the Young Person's Community: Support for Schools". Poster presented at The Marie Curie Annual Palliative Care Research Conference, March 28th 2014.ÌýÌý Abstract published online BMJ Supportive & Palliative Care SupplementÌýMarch 2014 Volume 4, Issue 1, Pages 112-113DOI: 10.1136/bmjspcare-2014-000653.24Ìý
  • Crocker J, Beecham E, Kelly P, Dinsdale A, Hemsley J, Jones L, Bluebond-Langner M.Ìý "Recruiting parents to paediatric palliative care research: impact of low invitation rates on sample bias". Poster presented at the Marie Cure Annual Palliative Care Research Conference, March 28th 2014.ÌýÌý Abstract published online BMJ Supportive & Palliative Care March 2014 Volume 4, Issue 1, Page 110Ìý DOI:10.1136/bmjspcare-2014-000653.17Ìý

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